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Visitors
Aiden Waters was born in February, 2004. We were so glad that baby Aiden had arrived. Right away, we noticed he had a very large birthmark on his face and scalp. The doctors called it a Port-Wine Stain and warned that Aiden might have glaucoma as the birthmark was also in his right eye. I took Aiden to an opthalmologist right away and it was confirmed that he indeed had glaucoma. Aiden was prescribed a number of eye drops and when that failed to contol the building pressure, he had eye surgery when he was two-months old.
At three months of age, Aiden had his first seizure. That's when he was diagnosed with a rare neurological brain disorder called Sturge-Weber Syndrome. Because Sturge-Weber is a progressive disease and Aiden would battle seizures all of his life without intervention, he had an extreme brain surgery called hemispherectomy (the removal of half his brain) on August 21, 2008. He hasn't had a seizure since the surgery.
Read the full story.
Aiden's Sturge-Weber Story
Support Groups, Resources, Facts, Family Connection
Entries provide a detailed account of Aiden's experince with Sturge-Weber
Lots of pictures of my handsome little man
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Your tax-deductible donation will go to the Sturge-Weber Foundation
Thursday, October 1, 2009
Beverly Wilshire Four Seasons Hotel
6:00 pm Cocktail Reception
7:00 pm Dinner, Awards, and Entertainment
Every two years, UCLA Neurosurgery hosts a Visionary Ball to raise money to benefit research and education at UCLA. At the Ball, they feature three live patient testimonials. I have been asked to share Aiden's story in front of 600 plus guests. I am excited and honored to be a part of this great event.
