"You have not lived until you have done something

for someone who can never repay you"

by UNKNOWN

Sturge-Weber has been deemed an Orphan Disease by the National Organization of Rare Diseases (NORD). Therefore, SWS has not been researched by doctors and the medical community as much as other diseases due to the very few who have it. Also, there is no government funding so the Sturge-Weber Foundation relies on it's members to raise awareness and funds for research.

Your donation will help those living with Sturge-Weber Syndrome in many ways. The Foundation's commitment is to improve the quality of life and care for those affected by supporting individuals and families through guidance, advocacy, referrals and education while building partnerships to research the cause and management of Sturge-Weber Syndrome.

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Donating through this website is simple, fast and totally secure. It is also the most efficient way to support Aiden's fundraising efforts.

All donations go directly to the Sturge-Weber Foundation.

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Your tax-deductible donation will go to the Sturge-Weber Foundation

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Lots of pictures of my handsome little man

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